Holly L Peay (Holly Peay, H L Peay)

Publication Activity (10 Years)

Years Active: 2017-2024
Publications (10 Years): 22

Top Topics

Duchenne Muscular Dystrophy

Decision Making

Top Venues

International journal of neonatal screening

Implementation science communications

European journal of human genetics : EJHG

This page only lists publications with an associated author ORCID identifier.

Publications

Aubrey Van Kirk Villalobos, Elizabeth Reynolds, Sean N Halpin, Sara R Jacobs, Holly L Peay
Prioritizing research needs and opportunities at the intersection of implementation science and engagement science. Implementation science communications 5 (1) (2024)
Aubrey Van Kirk Villalobos, Elizabeth Reynolds, Sean N Halpin, Sara R Jacobs, Holly L Peay
Prioritizing research needs and opportunities at the intersection of implementation science and engagement science. Implementation science communications 5 (1) (2024)
Sarah Nelson Potter, Brooke A Migliore, Javan K Carter, Veronica R Copeland, Edward C Smith, Holly L Peay, Katerina S Kucera
Age-Related Blood Levels of Creatine Kinase-MM in Newborns and Patients with Duchenne Muscular Dystrophy: Considerations for the Development of Newborn Screening Algorithms. International journal of neonatal screening 10 (2) (2024)
Aubrey Van Kirk Villalobos, Elizabeth Reynolds, Sean N Halpin, Sara R Jacobs, Holly L Peay
Prioritizing research needs and opportunities at the intersection of implementation science and engagement science. Implementation science communications 5 (1) (2024)
Sarah Nelson Potter, Brooke A Migliore, Javan K Carter, Veronica R Copeland, Edward C Smith, Holly L Peay, Katerina S Kucera
Age-Related Blood Levels of Creatine Kinase-MM in Newborns and Patients with Duchenne Muscular Dystrophy: Considerations for the Development of Newborn Screening Algorithms. International journal of neonatal screening 10 (2) (2024)
Sarah Nelson Potter, Brooke A Migliore, Javan K Carter, Veronica R Copeland, Edward C Smith, Holly L Peay, Katerina S Kucera
Age-Related Blood Levels of Creatine Kinase-MM in Newborns and Patients with Duchenne Muscular Dystrophy: Considerations for the Development of Newborn Screening Algorithms. International journal of neonatal screening 10 (2) (2024)
Spiros Tzivelekis, Jordan Orange, Christine Poulos, Lisa M Meckley, Holly L Peay, Jessie Sutphin, Vivian P Hernandez-Trujillo, Richard L Wasserman
Development of a novel shared decision making aid for primary immunodeficiency diseases. Immunotherapy 15 (9) (2023)
Spiros Tzivelekis, Jordan Orange, Christine Poulos, Lisa M Meckley, Holly L Peay, Jessie Sutphin, Vivian P Hernandez-Trujillo, Richard L Wasserman
Development of a novel shared decision making aid for primary immunodeficiency diseases. Immunotherapy (2023)
Spiros Tzivelekis, Jordan Orange, Christine Poulos, Lisa M Meckley, Holly L Peay, Jessie Sutphin, Vivian P Hernandez-Trujillo, Richard L Wasserman
Development of a novel shared decision making aid for primary immunodeficiency diseases. Immunotherapy 15 (9) (2023)
Heidi Cope, Beth Lincoln-Boyea, Angela You Gwaltney, Barbara B Biesecker, Rebecca Moultrie, Amir A Alexander, Nancy M P King, Jennifer Check, Allyson Corbo, Janice Tzeng, Katherine Ackerman Porter, Holly L Peay
Use of a web-based portal to return normal individual research results in Early Check: Exploring user behaviors and attitudes. Clinical genetics (2023)
Beth Lincoln Boyea, Rebecca R Moultrie, Barbara B Biesecker, Marcia Underwood, Martin Duparc, Anne C Wheeler, Holly L Peay
Misunderstood terms and concepts identified through user testing of educational materials for fragile X premutation: "Not weak or fragile?" Journal of genetic counseling (2023)
Holly L Peay, Stuart Rennie, Gail E Henderson
Reporting Individual-Level Research Results from Neurocognitive and Psychological Research in People Living with HIV: Lessons from Dementia Research. Current HIV/AIDS reports (2023)
Spiros Tzivelekis, Jordan Orange, Christine Poulos, Lisa M Meckley, Holly L Peay, Jessie Sutphin, Vivian P Hernandez-Trujillo, Richard L Wasserman
Development of a novel shared decision making aid for primary immunodeficiency diseases. Immunotherapy 15 (9) (2023)
Miranda L G Hallquist, Maia J Borensztein, Curtis R Coughlin, Adam H Buchanan, W Andrew Faucett, Holly L Peay, Maureen E Smith, Eric P Tricou, Wendy R Uhlmann, Karen E Wain, Kelly E Ormond
Defining critical educational components of informed consent for genetic testing: views of US-based genetic counselors and medical geneticists. European journal of human genetics : EJHG (2023)
Katherine Ackerman Porter, Cara O'Neill, Elise Drake, Sara M Andrews, Kathleen Delaney, Samantha Parker, Maria L Escolar, Stacey Montgomery, William Moon, Carolyn Worrall, Holly L Peay
Caregivers' assessment of meaningful and relevant clinical outcome assessments for Sanfilippo syndrome. Journal of patient-reported outcomes 6 (1) (2022)
Holly L Peay, Stuart Rennie, R Jean Cadigan, Angela Gwaltney, Thidarat Jupimai, Nittaya Phanuphak, Eugène Kroon, Donn J Colby, Nuchanart Ormsby, Sinéad C Isaacson, Sandhya Vasan, Carlo Sacdalan, Peeriya Prueksakaew, Khunthalee Benjapornpong, Jintanat Ananworanich, Gail E Henderson
Attitudes About Analytic Treatment Interruption (ATI) in HIV Remission Trials with Different Antiretroviral Therapy (ART) Resumption Criteria. AIDS and behavior 26 (5) (2022)
Brooke A Migliore, Linran Zhou, Martin Duparc, Veronica R Robles, Catherine W Rehder, Holly L Peay, Katerina S Kucera
Evaluation of the GSP Creatine Kinase-MM Assay and Assessment of CK-MM Stability in Newborn, Patient, and Contrived Dried Blood Spots for Newborn Screening for Duchenne Muscular Dystrophy. International journal of neonatal screening 8 (1) (2022)
Holly L Peay, Ryan Fischer, Brennan Mange, Ryan S Paquin, Edward C Smith, Alesia Sadosky, Leo Russo, Valeria Ricotti, Colin Rensch, Carl Morris, Amy Strong Martin, Annie Ganot, Katherine Beaverson, Carol Mansfield
Patients' and caregivers' maximum acceptable risk of death for non-curative gene therapy to treat Duchenne muscular dystrophy. Molecular genetics & genomic medicine 9 (5) (2021)
Erin Turbitt, Celeste D'Amanda, Sarah Hyman, Jayne Dixon Weber, John F P Bridges, Holly L Peay, Barbara B Biesecker
Parent clinical trial priorities for fragile X syndrome: a best-worst scaling. European journal of human genetics : EJHG 29 (8) (2021)
Celeste S D'Amanda, Holly L Peay, Anne C Wheeler, Erin Turbitt, Barbara B Biesecker
Fragile X syndrome clinical trials: exploring parental decision-making. Journal of intellectual disability research : JIDR 63 (8) (2019)
Ryan S Paquin, Ryan Fischer, Carol Mansfield, Brennan Mange, Katherine Beaverson, Annie Ganot, Amy Strong Martin, Carl Morris, Colin Rensch, Valeria Ricotti, Leo J Russo, Alesia Sadosky, Edward C Smith, Holly L Peay
Priorities when deciding on participation in early-phase gene therapy trials for Duchenne muscular dystrophy: a best-worst scaling experiment in caregivers and adult patients. Orphanet journal of rare diseases 14 (1) (2019)
Dmitry Khodyakov, Kathi Kinnett, Sean Patrick Grant, Ann Lucas, Ann S Martin, Brian Denger, Holly L Peay, Ian Coulter, Arlene Fink
Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development: A Research Protocol. JMIR research protocols 6 (4) (2017)