Preferences for disease-related information and transitional skills among adolescents with congenital heart disease in the early transitional stage.
Michèle de HossonKatya De GrooteHerlinde WynendaeleLaura Muiño MosqueraEva GoossensJulie De BackerPublished in: European journal of pediatrics (2023)
• This study showed that adolescents with CHD in early transition mainly need medical-related information. Their informational needs tend to decrease with age necessitating timely gauging for interest and delivering information. Adolescents report a low need to acquire transitional skills despite low self-esteemed skills levels.