"If only I had", patients' experiences during early oncology trials.

Maaike E A van Sasse van IJsseltDiane A J van der BiessenAndrea J van PuffelenDebbie G J Robbrecht Wendy H Oldenmenger

Published in: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer (2023)

Participants felt they tried everything and that they were treated to the limit. This not only gives the motivation to continue participating but also a sense of altruism. Despite different burdens, side-effects, and the feeling of being a test subject, the participants will not easily choose to stop participation in order to prevent saying afterwards: "If only I had".

Keyphrases

end stage renal disease
newly diagnosed
chronic kidney disease
peritoneal dialysis
physical activity
prognostic factors
patient reported outcomes