Life for patients with myelofibrosis: the physical, emotional and financial impact, collected using narrative medicine-Results from the Italian 'Back to Life' project.
Francesca PalandriGiulia BenevoloAlessandra IurloElisabetta AbruzzeseAngelo M CarellaChiara PaoliGiuseppe A PalumboMassimiliano BonifacioDaniela CilloniAlessandro AndrianiAttilio GuariniDiamante TurriElena Maria ElliAntonietta FalconeBarbara AnaclericoPellegrino MustoNicola Di RenzoMario TiribelliRenato ZambelloCaterina SpinosaAlessandra RiccoLetizia RaucciBruno MartinoMario AnnunziataSilvia PascaleAnna Marina LiberatiGiorgio La NasaMargherita MaffioliMassimo BrecciaNovella PuglieseSilvia BettiGianfranco GiglioAntonietta CappuccioLuigi RealePublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2018)
Better understanding of the personal life of MF patients and their families could improve the relationships between health workers and patients, resulting in better focused healthcare pathways and more effective financial support to maintain patients in their social roles.