Do investments in cancer registry databases and tools bring added value? NORDCAN as an example.
Hans Henrik StormSiri LarønningenFreddie BrayPublished in: Acta oncologica (Stockholm, Sweden) (2023)
User statistics and scientific output clearly points to NORDCAN bringing added value given resources expended, even with the additional costs imposed to ensure GDPR compliance. Research funding indicates that the databases and interactive tools are critical as both research and education resources. Nonetheless, a sustainable funding model is needed if NORDCAN is to continue to fulfill its utility in cancer control, health care planning and cancer research.