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Consent and Autonomy in the Genomics Era.

Rachel HortonAnneke Lucassen
Published in: Current genetic medicine reports (2019)
We conclude that 'fully informed' consent is often not possible in the context of genomic testing, but that an open-ended approach is appropriate. We consider that such broad consent can only work if located within systems or organisations that are trustworthy and that have measures in place to ensure that such open-ended agreements are not abused. We suggest that a relational concept of autonomy has benefits in encouraging focus on the networks and relationships that allow decision making to flourish.
Keyphrases
  • decision making
  • minimally invasive
  • single cell
  • copy number
  • dna methylation