A qualitative study of participants' views on re-consent in a longitudinal biobank.
Mary Dixon-WoodsDavid KocmanLiz BrewsterJanet WillarsGraeme LaurieCarolyn TarrantPublished in: BMC medical ethics (2017)
Participants' perceptions of research as a process of mutual co-operation between volunteer and researcher were fundamental to their views on consent. Consenting arrangements for biobanks should respect the cooperative values that are important to participants, recognise the two logics used by research volunteers, and avoid rigidity. Agility may be favoured by tiered consent combined with strong oversight mechanisms; this approach requires evaluation.
Keyphrases