Digital Health Literacy and Person-Centred Care: Co-Creation of a Massive Open Online Course for Women with Breast Cancer.
Yolanda Álvarez-PérezAndrea Duarte-DíazAna Toledo-ChávarriAnalía Abt-SacksVanesa Ramos-GarcíaAlezandra Torres-CastañoAmado RiveroLilisbeth Perestelo-PérezPublished in: International journal of environmental research and public health (2023)
The diagnosis of breast cancer (BC) can make the affected person vulnerable to suffering the possible consequences of the use of low-quality health information. Massive open online courses (MOOCs) may be a useful and efficient resource to improve digital health literacy and person-centred care in this population. The aim of this study is to co-create a MOOC for women with BC, using a modified design approach based on patients' experience. Co-creation was divided into three sequential phases: exploratory, development and evaluation. Seventeen women in any stage of BC and two healthcare professionals participated. In the exploratory phase, a patient journey map was carried out and empowerment needs related to emotional management strategies and self-care guidelines were identified, as well as information needs related to understanding medical terminology. In the development phase, participants designed the structure and contents of the MOOC through a Moodle platform. A MOOC with five units was developed. In the evaluation phase, participants strongly agreed that their participation was useful for the MOOC's development and participating in the co-creation process made the content more relevant to them (experience in the co-creation); most of the participants positively evaluated the content or interface of the MOOC (acceptability pilot). Educational interventions designed by women with BC is a viable strategy to generate higher-quality, useful resources for this population.
Keyphrases
- health information
- healthcare
- social media
- quality improvement
- minimally invasive
- end stage renal disease
- newly diagnosed
- palliative care
- physical activity
- ejection fraction
- chronic kidney disease
- prognostic factors
- clinical trial
- type diabetes
- peritoneal dialysis
- case report
- pain management
- polycystic ovary syndrome
- pregnancy outcomes
- pregnant women
- chronic pain
- skeletal muscle
- affordable care act