'What if I'm no longer around?': An evaluative description of a structured group conversation about the care for persons with profound intellectual and multiple disabilities when they outlive their parents.

Kasper Kruithof Erik OlsmanDick WillemsKarin Mariëlle VolkersBas KleijwegtAppolonia Nieuwenhuijse

Published in: Journal of applied research in intellectual disabilities : JARID (2023)

The group conversation encourages parents to communicate explicitly about the future care for their child with PIMD, and offers both family members and care professionals support in exploring this future care together.

Keyphrases

healthcare
palliative care
quality improvement
pain management
current status
intellectual disability
chronic pain