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Experiences of Canadian Parents of Young Children With Cleft Lip and/or Palate.

Eleonore E BreuningRebecca J M CourtemancheDouglas J Courtemanche
Published in: The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association (2020)
The experience of parents of children with cleft lip and/or palate is complex but can be organized into 4 themes. Clinics may consider suggestions offered by parents to improve care. Future work should address parents' needs and aim to create a parent-reported quality-of-life measure specific to parents of young children with cleft lip and/or palate.
Keyphrases
  • healthcare
  • primary care
  • young adults
  • palliative care
  • chronic pain