Parent proxy assessment of sibling quality of life following pediatric hematopoietic cell transplantation.

David K BuchbinderSunita K PatelJacqueline N CasillasDiane J NugentSteven NeudorfLeonard S SenderLilibeth TornoHeather HusztiLonnie K ZeltzerSusan K Parsons

Published in: Health and quality of life outcomes (2019)

While proxy-reported QoL of siblings did not differ significantly from normative data, both parent QoL and family function were associated with sibling QoL. Future research is needed to understand how siblings themselves perceive their QoL following HCT.

Keyphrases

intellectual disability
electronic health record
big data
autism spectrum disorder
cell death
artificial intelligence
clinical evaluation