US Residents' Preferences for Sharing of Electronic Health Record and Genetic Information: A Discrete Choice Experiment.
Abram L WagnerFelicia ZhangKerry A RyanEric XingPaige NongSharon L R KardiaJodyn PlattPublished in: Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research (2023)
Hospital systems and regulatory bodies should consider patient preferences for sharing of personal medical records or genetic information. For both genetic and EHR information, patients strongly prefer their data to be deidentified and to have the choice to opt out of sharing information with commercial companies.
Keyphrases
- electronic health record
- health information
- social media
- healthcare
- genome wide
- end stage renal disease
- clinical decision support
- adverse drug
- decision making
- copy number
- newly diagnosed
- ejection fraction
- chronic kidney disease
- peritoneal dialysis
- dna methylation
- gene expression
- patient reported outcomes
- deep learning
- machine learning
- data analysis