Leveraging Expertise and Optimizing Clinical Research: Initial Success of a Pediatric Epilepsy Surgery Collaborative.
Madison M BerlJennifer I KoopAlyssa S AilionDonald J BeardenKatrina BoyerCrystal M CooperAmanda M DecrowPriscilla H DuongPatricia Espe-PfeiferMarsha GabrielElise HodgesDavid F MarshallKelly A McNallyAndrew E MolnarEmily K OlsenKim E OnoKristina E PatrickBrianna M PaulJonathan RomainLeigh N SepetaRebecca L H StilpGreta N WilkeningMichael ZaccarielloFrank ZelkoMichael Scott Perrynull nullPublished in: Epilepsia (2023)
We established a collaborative network and fundamental infrastructure to address questions outlined by the Epilepsy Research Benchmarks. There is a wide range in age and IQ of patients considered for pediatric epilepsy surgery, yet it appears social determinants of health impact access to care. Consistent with other national cohorts, this US cohort has a downward shift in IQ associated with seizure severity.
Keyphrases
- quality improvement
- minimally invasive
- healthcare
- end stage renal disease
- coronary artery bypass
- ejection fraction
- chronic kidney disease
- newly diagnosed
- public health
- temporal lobe epilepsy
- mental health
- peritoneal dialysis
- health information
- coronary artery disease
- patient reported outcomes
- acute coronary syndrome
- young adults
- risk assessment
- climate change
- network analysis