Transitional care and clinical management of adolescents, young adults, and suspected new adult patients with congenital central hypoventilation syndrome.
Susan M SlatteryIris A PerezIsabella CeccheriniMaida L ChenKyle C KurekKai Lee YapThomas G KeensIlya KhaytinHeather A BallardElizabeth A SokolAngeli MittalCasey M RandDebra E Weese-MayerPublished in: Clinical autonomic research : official journal of the Clinical Autonomic Research Society (2022)
While a lack of experience and evidence exists in the care of adults with CCHS and LO-CCHS, a review of the relevant literature and expert consensus provides guidance for transitional care areas.