Ear and upper airway clinical outcome measures for use in primary ciliary dyskinesia research: a scoping review.
Mihaela AlexandruRaphaël VeilBruna RubboMyrofora GoutakiSookyung KimYin Ting LamJérôme NevouxJane S A LucasJean-François PaponPublished in: European respiratory review : an official journal of the European Respiratory Society (2023)
This scoping review highlights the lack of data regarding ear and upper airway outcomes in PCD. It also reports a high heterogeneity in outcome definitions or measures. We provide well-founded specific suggestions to standardise ear and upper airway outcome definitions and reporting for future PCD research studies.