A scoping review of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis (IPF).
Carita BramhillDonna LanganHelen MulryanJessica Eustace-CookAnne -Marie RussellAnne Marie BradyPublished in: PloS one (2024)
This review highlights the myriad of needs patients with IPF have and highlights the urgent need for a systems approach to care, underpinned by an appropriately resourced multi-disciplinary team. The range of needs experienced by patients with IPF are broad and varied and require a holistic approach to care including targeted research, coupled with the continuing development of patient-focused services and establishment of clinical care programmes.
Keyphrases
- idiopathic pulmonary fibrosis
- healthcare
- palliative care
- quality improvement
- interstitial lung disease
- end stage renal disease
- affordable care act
- chronic kidney disease
- newly diagnosed
- pain management
- primary care
- mental health
- peritoneal dialysis
- prognostic factors
- case report
- patient reported outcomes
- health insurance