Health-Related Quality of Life in Patients with Adult-Onset Myotonic Dystrophy Type 1: A Systematic Review.

Erik LandfeldtJosefin EdströmCecilia Jimenez-MorenoBaziel G M van EngelenJanbernd KirschnerHanns Lochmüller

Published in: The patient (2020)

HRQoL in adult-onset DM1 has been extensively studied using the SF-36 and the INQoL, but current estimates are inconclusive, and little is known of the impact of the disease as measured using other instruments. Our data synthesis should help characterize the patient burden of DM1 and inform future studies of HRQoL in this indication.

Keyphrases

multidrug resistant
case report
electronic health record
glycemic control
current status
early onset
big data
case control
muscular dystrophy
risk factors
machine learning
metabolic syndrome
adipose tissue
data analysis
duchenne muscular dystrophy