Health-related quality of life and its influencing factors in patients with primary cutaneous B-cell lymphomas: A multicentric study in 100 patients.
A E C SchirrenJ D AlbrechtSusanne Maria MelchersC WeißS BüttnerE DippelJ GosmannC JonakC-D KlemkeM Laturnus-ChangE LivingstoneChristina MitteldorfP SchummerRudolf StadlerR StranzenbachS S Weyer-FahlbuschMarion WobseM ZiemerJ P NicolayPublished in: Journal of the European Academy of Dermatology and Venereology : JEADV (2024)
HRQoL is impaired in CBCL patients, even though, in the face of indolent disease course and favourable prognosis in the majority of cases. Of note, our investigator-designed tool identified worries about dying, feeling prejudiced/discriminated, and the type of treatment to have a negative impact on patients' HRQoL. Our study highlights the importance of a thorough patient-doctor communication to capture overall disease burden because generic HRQoL tools might lack of disease-specific items.