Health impact of acute intermittent porphyria in latent and non-recurrent attacks patients.
Juan Buendía-MartínezMaría Barreda-SánchezLidya Rodríguez-PeñaMaría Juliana Ballesta-MartínezVanesa López-GonzálezMaría José Sánchez-SolerAna Teresa Serrano-AntónMaría Elena Pérez-TomásRemedios Gil-FerrerFrancisco Avilés-PlazaGuillermo Glover-LópezCarmen Carazo-DíazEncarna Guillén-NavarroPublished in: Orphanet journal of rare diseases (2021)
AIP remains a chronically symptomatic disease that adversely affects health and quality of life, even in patients with low rate of acute attacks. We suggest a regular monitoring of patients with symptomatic AIP regardless of their attack rate or the time since their last attack, with proper pain management and careful attention to kidney function.
Keyphrases
- pain management
- liver failure
- healthcare
- public health
- end stage renal disease
- respiratory failure
- mental health
- newly diagnosed
- drug induced
- chronic pain
- ejection fraction
- chronic kidney disease
- health information
- prognostic factors
- working memory
- patient reported outcomes
- hepatitis b virus
- intensive care unit
- risk assessment
- climate change
- social media
- acute respiratory distress syndrome