Information needs of patients with chronic diseases and their relatives for web-based advance care planning: a qualitative interview study.

Doris van der Smissen Judith A C Rietjens Julia Elisabeth Wilhelmina Cornelia van Gemert-Pijnen Sandra van Dulmen Agnes van der Heide Ida J Korfage

Published in: BMC palliative care (2021)

We conclude that information needs for ACP included guidance in ACP, support in making decisions about medical treatment, and practical support in arranging care. We recommend adapting web-based ACP information to the information needs of patients and their relatives to increase its findability, uptake and usefulness.

Keyphrases

health information
healthcare
end stage renal disease
advance care planning
ejection fraction
newly diagnosed
chronic kidney disease
palliative care
peritoneal dialysis
quality improvement
patient reported outcomes
pain management
combination therapy