Do patient-reported outcome measures measure up? A qualitative study to examine perceptions and experiences with heart failure proms among diverse, low-income patients.
Jonathan DavisKristan OlazoMaribel SierraMichelle E TarverBrittany CaldwellAnindita SahaSarah LiskerCourtney LylesUrmimala SarkarPublished in: Journal of patient-reported outcomes (2022)
Patients from this diverse, low-income, majority non-white population experience unique challenges and circumstances that impact their ability to manage disease. In this study, patients were receptive to the KCCQ-12 as a tool but perceived that it did not adequately capture key health components such as mental health and social relationships that deeply impact their ability to manage HF. Further study on the incorporation of social determinants of health into PROMs could make them more useful tools in evaluating and managing HF in diverse, underserved populations.
Keyphrases
- patient reported outcomes
- mental health
- end stage renal disease
- heart failure
- healthcare
- ejection fraction
- newly diagnosed
- chronic kidney disease
- public health
- prognostic factors
- peritoneal dialysis
- primary care
- depressive symptoms
- physical activity
- risk assessment
- health information
- patient reported
- left ventricular