Supportive care needs of patients living with an extremely rare and unpredictable cancer: The Epithelioid Haemangioendothelioma patient experience.
Olga HussonMarije WeidemaHugh LeonardLisa Hartle DeYoungWinette van der GraafLonneke van de Poll-FransePublished in: European journal of cancer care (2021)
Supportive care needs were found in all domains, highest in the psychological domain, and were associated with sociodemographic, clinical and symptom burden characteristics. Adequate and tailored supportive care should be offered especially to highly symptomatic EHE patients.