Quality of life, health-related quality of life, and associated factors in Huntington's disease: a systematic review.

Pearl J C van Lonkhuizen Wiebke FrankAnne-Wil HeemskerkErik van Duijn Susanne T de Bot Alzbeta Mühlbäck Georg Bernhard Landwehrmeyer Niels Henrik Chavannes Eline Meijernull null

Published in: Journal of neurology (2023)

(HR)QoL is experienced differently across the course of the disease. Although (HR)QoL is key for understanding the impact of HD and the effect of symptomatic treatment, there is a need to improve the methodological and conceptual shortcomings that were found in most studies, especially regarding the conceptual clarity when reporting on QoL and HRQoL. Suggestions for strengthening these shortcomings are provided in this review.

Keyphrases

emergency department
case control