Login / Signup

What Parents of Children Born with a Cleft Lip and/or Palate Want to Know About the Care for their Child.

Florence A C J HeijstersM D van EickF van NassauMark-Bram BoumanCorstiaan C BreugemM C de BruijneMargriet G MullenderJ P W Don Griot
Published in: The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association (2024)
Our findings emphasize the importance of gaining insights into wishes and information needs from care recipients who can provide insights in their information needs. With these findings, information provision should be redesigned to improve and to foster the further transition to family-centered care.
Keyphrases
  • palliative care
  • healthcare
  • quality improvement
  • health information
  • young adults
  • affordable care act
  • mental health
  • kidney transplantation
  • chronic pain
  • low birth weight
  • preterm birth