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End-of-life care for children with complex congenital heart disease: Parents' and medical care givers' perceptions.

Caterina AgostoFrancesca BenedettiValentina De TommasiOrnella MilanesiGiovanni StellinMassimo A PadalinoFranca Benini
Published in: Journal of paediatrics and child health (2020)
We believe that these data suggest an unconscious reluctance to change goals of care in EoL, shifting from intensive care to comfort and quality of life.
Keyphrases
  • congenital heart disease
  • healthcare
  • young adults
  • palliative care
  • primary care
  • electronic health record
  • big data
  • quality improvement
  • affordable care act
  • pain management
  • machine learning
  • public health