The invisible child: Sibling experiences of growing up with a brother with severe haemophilia-An interpretative phenomenological analysis.
Catherine TregidgoJames ElanderPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2018)
These findings could be translated into better advocacy and support for siblings through haemophilia centres. More research is also needed on how healthy siblings are affected by haemophilia, including studies guided by family systems theory.