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Beyond childhood: exploring the state of transitional care in pediatric pilocytic astrocytoma.

Katherine ChandlerVivek A PisharodyJulia GrigorianShuting MaoTianwen MaArman JahangiriJoshua ChernKimberly Hoang
Published in: Neurosurgical focus (2024)
The authors found that there was a low rate of successful transition from pediatric to adult care for PPA; 17.5% of age-eligible patients are now cared for by adult providers, whereas an additional 18.6% completed appropriate follow-up during childhood and did not require transition to adult care. These findings underscore opportunities for improvement in the pediatric-to-adult transition process for patients with PPA, particularly for those with non-GTR who were not followed for at least 10 years, during which the risk of disease progression is thought to be highest.
Keyphrases
  • childhood cancer
  • healthcare
  • palliative care
  • quality improvement
  • young adults
  • ejection fraction
  • newly diagnosed
  • pain management
  • affordable care act
  • prognostic factors
  • patient reported outcomes
  • patient reported