Patient reported outcome measures (PROMs) in amyotrophic lateral sclerosis.
Fabiola De MarchiJames D BerryJames ChanSarah CaldwellAmy EllrodtJennifer ScaliaKatherine BurkeTon FangRachel Clark SisodiaLee H SchwammLidia M V R MouraSabrina PaganoniPublished in: Journal of neurology (2020)
Collection of PROMs is feasible in the context of routine ALS care. PROM scores are highly correlated with validated ALS outcome measures.