Mixed method study of quality of life for children with trisomy 18 and 13 after cardiac surgery.
Meaghann S WeaverNicole BirgeHoward HsuChristine WoellJacob E RobinsonChristopher WichmanJames HammelPublished in: Cardiology in the young (2020)
Understanding parental motivations and perceptions on the child's quality of life has potential to inform care teams in considering cardiac interventions for children with trisomy 18 and trisomy 13.