Mixed method study of quality of life for children with trisomy 18 and 13 after cardiac surgery.

Meaghann S WeaverNicole BirgeHoward HsuChristine WoellJacob E RobinsonChristopher WichmanJames Hammel

Published in: Cardiology in the young (2020)

Understanding parental motivations and perceptions on the child's quality of life has potential to inform care teams in considering cardiac interventions for children with trisomy 18 and trisomy 13.

Keyphrases

healthcare
young adults
primary care
palliative care
physical activity
left ventricular
quality improvement
heart failure
risk assessment
pain management
atrial fibrillation
chronic pain
human health
climate change
health insurance