Impact of prophylaxis on health-related quality of life of boys with hemophilia: An analysis of pooled data from 9 countries.

Koyo UsubaVictoria E PriceVictor BlanchetteAudrey AbadCarmen AltisentLoretta Buchner-DaleyJorge David Aivazoglou Carneiro Brian M Feldman Kathelijn FischerJohn GraingerSusanne HolzhauerKoon-Hung LukeSandrine Meunier Margareth Castro OzeloLing TangSandra V AntunesPaula VillaçaCindy WakefieldGilian WharfeRunhui WuNancy L Young

Published in: Research and practice in thrombosis and haemostasis (2019)

This study confirms the positive effect of prophylaxis on HRQoL in boys with hemophilia in a real-world setting and provides initial benchmarks for interpreting HRQoL scores based on use of the CHO-KLAT instrument.

Keyphrases

electronic health record
big data

machine learning

artificial intelligence

phase iii