MyPref: pilot study of a novel communication and decision-making tool for adolescents and young adults with advanced cancer.
Jennifer M SnamanGabrielle HeltonRachel L HolderEve WittenbergAnna RevetteJames A TulskyJustin N BakerJoanne WolfePublished in: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer (2020)
MyPref is an objective way to estimate AYA and PTP preferences for future treatment characteristics. This novel tool may be a useful way to engage AYAs and PTPs in discussions around preferences for treatment and prepare AYAs for future decision-making. We are currently evaluating this tool longitudinally to determine the impact on actual treatment decisions.