Login / Signup

"Home wasn't really home anymore": Understanding caregivers' perspectives of the impact of blood cancer caregiving on the family system.

Carla L FisherMichaela D MullisAmanda KastrinosEaston WollneyElisa S WeissMaria Sae-HauCarma L Bylund
Published in: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer (2020)
Themes identify ways to provide support to both caregiver types. Support care resources could help families navigate gains and losses impacting the family system after a blood cancer diagnosis. Both caregiver types described experiencing (and/or their family experiencing) a loss in relational connection, feeling alone, and members distancing themselves. Both caregiver types also described gains in family functioning, like strengthened bonds and togetherness. Findings validate the need for family-centered support with key areas to address for healthy family functioning.
Keyphrases
  • healthcare
  • papillary thyroid
  • palliative care
  • quality improvement