Exploring the health-related decision-making experiences of people with chronic kidney disease and their caregivers: A qualitative study.
Shena B GazawayOrlando GutierrezRachel WellsTamara Nix-ParkerClaretha LyasShawona DanielKatina Lang-LindseyTara BryantRichard KnightJames Nicholas Dionne-OdomPublished in: Health expectations : an international journal of public participation in health care and health policy (2023)
This work was conducted in full collaboration with a community advisory board consisting of patients with CKD, caregivers and clinicians. These members are noted in the acknowledgement section, and those who worked with the team to develop the interview guide, study protocols, and manuscript preparation are included as authors. As part of their role, advisory members met monthly, providing input on recruitment, study progress, inclusion of diverse voices and added relevance to study findings.