Differences in health care experiences between rare cancer and common cancer patients: results from a national cross-sectional survey.
Eline de HeusVivian EngelenIrene DingemansCarol RichelMarga SchrieksJan Maarten van der ZwanMarc G BesselinkMark I van Berge HenegouwenCarla M L van HerpenSaskia F A DuijtsPublished in: Orphanet journal of rare diseases (2021)
Rare and common cancer patients differ in their health care experiences. Health care for rare cancer patients can be further improved by proper referral to centers of expertise and building a clinical network specifically for rare cancers.