Care partner needs of people with neurodegenerative disorders: What are the needs, and how well do the current assessment tools capture these needs? A systematic meta-review.
Irina KinchinLayla EdwardsEmily AdrionYaohua ChenAya AshourIracema LeroiAnna Brugulat-SerratJane PhillipsFiona MastersonSlavica KochovskaPublished in: International journal of geriatric psychiatry (2022)
Current tools do not fully or adequately capture the self-identified needs of care partners of people living with neurodegenerative disorders. Given the high burden on care partners, which has been further exacerbated by the COVID-19 (SARS CoV-2) pandemic, the needs assessment tools should align with the self-reported needs of care partners throughout the caregiving trajectory to better understand unmet needs and target supportive interventions.