BIPOC experiences of (anti-)racist patient engagement in adolescent and young adult oncology research: an electronic Delphi study.
Christabel K CheungKimberly A MillerTrenette Clark GoingsBria N ThomasHaelim LeeRachel E BrandonThuli Katerere-VirimaLaura E HelblingJosé M CausadiasMichael E RothFrantz M BerthaudLaundette P JonesValentina A RossGail D BetzCole D SimmonsJay CarterSimon J DaviesMegan L GilmanMark A LewisGilberto de Lima LopesReginald D Tucker-SeeleyPublished in: Future oncology (London, England) (2024)
Aims: To characterize Black, Indigenous and People of Color (BIPOC) adolescent and young adult (AYA) cancer patients' experiences of patient engagement in AYA oncology and derive best practices that are co-developed by BIPOC AYAs and oncology professionals. Materials & methods: Following a previous call to action from AYA oncology professionals, a panel of experts composed exclusively of BIPOC AYA cancer patients (n = 32) participated in an electronic Delphi study. Results: Emergent themes described BIPOC AYA cancer patients' direct experiences and consensus opinion on recommendations to advance antiracist patient engagement from BIPOC AYA cancer patients and oncology professionals. Conclusion: The findings reveal high-priority practices across all phases of research and are instructional for advancing health equity.