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Family-centred service in paediatric acquired brain injury rehabilitation: perspectives of children and adolescents and their families.

Taylor JenkinKate D'CruzVicki A AndersonAdam ScheinbergSarah J Knight
Published in: Disability and rehabilitation (2022)
These findings highlight the importance of clinicians actively seeking to understand families' unique contexts, needs, and priorities during rehabilitation through two-way information sharing with families. Through developing a greater understanding of families' unique contexts, clinicians can be better placed to tailor rehabilitation according to their unique circumstances and needs.Implications for rehabilitationRehabilitation involves active collaboration between families and clinicians that is responsive to changing needs over time.Family involvement in rehabilitation is shaped by family life, and families have unique needs following paediatric acquired brain injury.It is important that clinicians strive to develop an understanding of families' unique needs, values, preferences, and lives to determine how to best support and involve them in rehabilitation.
Keyphrases
  • brain injury
  • subarachnoid hemorrhage
  • palliative care
  • mental health
  • intensive care unit
  • cerebral ischemia
  • healthcare
  • health information
  • cancer therapy
  • social media
  • blood brain barrier