Clinically important change for the FACIT-Fatigue scale in paroxysmal nocturnal hemoglobinuria: a derivation from international PNH registry patient data.
David CellaPeter JohanssonYasutaka UedaIoannis TomazosPhilippe GustovicAlice WangAmi S PatelHubert SchrezenmeierPublished in: Journal of patient-reported outcomes (2023)
These results support the use of 5 points as the CIC for FACIT-Fatigue in patients with PNH, which is within range of the CICs reported in other diseases (3-5 points).