Measuring the impact of hemophilia on families: Development of the Hemophilia Family Impact Tool (H-FIT).
Saunya DoverNancy L YoungVictor S BlanchetteRobert J KlaassenAnthony K C ChanCindy WakefieldVanessa BouskillManuel CarcaoMark BelletruttiAisha A K BruceVictoria E PricePublished in: Research and practice in thrombosis and haemostasis (2021)
A novel, disease-specific tool, the H-FIT, has been developed to measure the impact of hemophilia on families. The H-FIT has good preliminary measurement properties and may be responsive to changes in therapy associated with a decreased burden of administration.