A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19: perceptions of trial participants and research team members.
Amanda WurzDelaney DuchekKelsey EllisMannat BansalMarie-Eve CarrierLydia TaoLaura DyasLinda KwakkenbosBrooke LevisGhassan El-BaalbakiDanielle B RiceYin WuRichard S HenryLaura BustamanteSami HarbShannon HebblethwaiteScott Burton PattenSusan J BartlettJohn VargaLuc MouthonSarah MarkhamBrett D ThombsS Nicole Culos-Reednull nullnull nullnull nullPublished in: Disability and rehabilitation (2023)
clinicaltrials.gov (NCT04335279)IMPLICATIONS FOR REHABILITATIONThe videoconference-based, supportive care SPIN-CHAT Program enhanced psychological health amongst individuals affected by systemic sclerosis.SPIN-CHAT Program participants and research team members shared that being around similar others, program structure, and self-management support were important and may have contributed to enhanced psychological health.Further efforts are required to explore experiences within supportive care programs to better understand if and how psychological health is impacted.