Long-term health-related quality of life in young childhood cancer survivors and their parents.
Joanna E FardellClaire E WakefieldRichard De Abreu LourencoChristina SignorelliMaria McCarthyJordana McLooneMichael Philip OsbornMelissa GabrielAntoinette C AnazodoFrank AlvaroLiane LockwoodThomas WalwynJane SkeenRamon TillemansRichard J Cohnnull nullPublished in: Pediatric blood & cancer (2021)
Parents report that young survivors experience small but significant ongoing reductions in HRQoL. While overall mean levels of HRQoL were no different to population norms, a subset of parents reported HRQoL that was clinically meaningfully different from perfect health. Managing young survivors' late effects and improving parents' resilience through survivorship may improve HRQoL in long-term survivorship.