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De-novo ATR-16 syndrome associated with inherited hemoglobin Evanston causing HbH phenotype: a rare occurrence.

Ekta JajodiaHemant MenghaniNeeraj AroraAnkit Jitani
Published in: Annals of hematology (2024)
Abnormality of three α-globin genes, either deletion or point mutation results in symptomatic Hemoglobin H (HbH) phenotype. Most of such cases of α-globin defects are inherited from the parents, de-novo cases are exceedingly rare. Herein, a case of HbH is reported where the proband inherited one α-globin gene with a point mutation (α Evanston ) from the mother. This was associated with large de-novo deletion of chromosome 16p13.3 resulting in α-thalassemia and mental retardation (ATR-16) syndrome. This deletion also encompassed two α-globin genes from chromosome 16, eventually leading to --/αα Evanston genotype, explaining the clinical presentation of the proband. The challenges in screening of such cases and confirming the molecular diagnosis along with the mode of inheritance has been discussed.
Keyphrases
  • genome wide
  • copy number
  • genome wide identification
  • mitochondrial dna
  • case report
  • dna damage response
  • risk assessment
  • mental health
  • dna methylation
  • bioinformatics analysis
  • red blood cell
  • oxidative stress