Impact of hospitalization for vaso-occlusive crisis on health-related quality of life in children with sickle cell disease.

Caroline VuongIbtissame MoussaMaud M van MuilekomHarriët HeijboerEva RettenbacherLotte HavermanJos TwiskKarin FijnvandraatCorien L Eckhardt

Published in: Pediatric blood & cancer (2023)

The adverse effects of hospitalization for VOC in children with SCD persist up to 12 months after hospitalization. After hospitalization for VOC, extra attention and support for its negative impact on HRQoL are recommended. This study also underlines the importance of systematically measuring HRQoL, allowing clinicians to intervene accordingly.

Keyphrases

young adults
sickle cell disease
public health
palliative care
working memory
emergency department