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The challenges characterizing the lived experience of caregiving. A qualitative study in the field of spinal cord injury.

Claudia ZaniniJulia AmannMirjam BrachArmin GemperliSara Rubinelli
Published in: Spinal cord (2021)
Informal caregivers have a major role in supporting people with SCI. But their needs are not static. Any strategy to empower them has to adapt to an evolving role characterized by multiple tasks and challenges. A functional relationship between caregivers and care recipients is based on the recognition of their individualities and the different phases of adaptation, which is also an enriching process.
Keyphrases
  • spinal cord injury
  • palliative care
  • healthcare
  • spinal cord
  • working memory
  • neuropathic pain
  • quality improvement