What aspects of health and wellbeing are most important to parent carers of children with disabilities?
Caomhan McGlincheyPhillip Antony HarniessAleksandra J BorekAlice GarroodAnnabel McDonaldFleur BoyleStuart LoganChristopher MorrisPublished in: Health expectations : an international journal of public participation in health care and health policy (2024)
Our team carries out patient and public involvement (PPI) through a Family Faculty group facilitated by a Family Involvement Co-ordinator (A. McD.) who is herself a parent carer. A study-specific PPI working group was established which included members of the Family Faculty. The PPI group advised on various aspects of the research as reported in the paper. The manuscript was co-authored by the team's Family Involvement Co-ordinator (A. McD.).