Shared Vision for Improving Outcomes for Serious Fungal Diseases: Report of a Patient, Caregiver, and Clinician Summit.
Rob PurdieLisa A TushlaJonathan FerrettiGonzalo Kiko CastroRicky WatsonThomas DavisBrianna RaborgPatrick B MaziAngela StromanCarolynn Thomas JonesThomas J WalshTom M ChillerPeter G PappasJohn MeyerAndrej SpecPublished in: Open forum infectious diseases (2024)
A summit involving patients with IFD, family caregivers, and mycology experts identified a substantial nonclinical burden of disease associated with IFD. Patients and mycology experts prioritized several goals for education, advocacy, and research to raise awareness of IFD and improve outcomes.