Neurofibromatosis Type 1 (NF1): Addressing the Transition from Pediatric to Adult Care.
Heather B RadtkeAngela BergerTammi SkeltonAllison Goetsch WeismanPublished in: Pediatric health, medicine and therapeutics (2023)
Health care transition, or HCT, is the process of adolescents and young adults moving from a child/family-centered model of health care to an adult/patient-centered model of health care. Healthcare providers have an essential role in this process which can be especially challenging for individuals with medical or special healthcare needs. Neurofibromatosis type 1 (NF1) is a complex multisystem disorder requiring lifelong medical surveillance, education, and psychosocial support. This review highlights the transition needs of NF1 patients and provides resources for both clinicians and families to facilitate HCT in this population. The authors propose a framework for the development of an effective NF1 transition program by using the Six Core Elements model of the Got Transition program, reviewing existing literature, and incorporating author experiences in the care and transition of NF1 patients.
Keyphrases
- healthcare
- signaling pathway
- lps induced
- end stage renal disease
- quality improvement
- ejection fraction
- nuclear factor
- oxidative stress
- pi k akt
- mental health
- newly diagnosed
- palliative care
- prognostic factors
- systematic review
- public health
- inflammatory response
- social media
- cell death
- immune response
- chronic pain
- health insurance