Measurement of Quality of Life in Patients with Mycosis Fungoides/Sézary Syndrome Cutaneous T-Cell Lymphoma: Development of an Electronic Instrument.

Stacey A McCaffrey Ryan A Black Mitchell Nagao Marjan Sepassi Gaurav Sharma Susan Thornton Youn H Kim Julia Braverman

Published in: Journal of medical Internet research (2019)

Empirical evaluation demonstrated strong evidence of excellent psychometric properties. Utilizing a patient-centered measure development approach ensures that this QoL instrument captures the information that is most meaningful and clinically relevant to patients.

Keyphrases

psychometric properties
end stage renal disease
patient reported outcomes
newly diagnosed
ejection fraction
chronic kidney disease
peritoneal dialysis
healthcare
health information
social media