Quality of life assessment instruments in children and adolescents with neuromuscular diseases: a systematic scoping review.
Karoliny Lisandra Teixeira CruzIsadora Cristina Sousa SantosCyntia Rogean De Jesus Alves De BaptistaAna Cláudia Mattiello-SverzutPublished in: Health and quality of life outcomes (2024)
Our results were able to map the main QoL assessment instruments of children and adolescents with neuromuscular disease and the most cited instrument was the PedsQL™ Inventory 3.0 Neuromuscular Module. Larger studies that assess psychometric properties and that are validated for most diseases are needed.