Quality of Life in Children with Prader-Willi Syndrome and the Impact of the Disease on the Functioning of Families.
Anna RozensztrauchSmigiel RobertPublished in: International journal of environmental research and public health (2022)
Research on the QoL of patients with PWS and their families is very important in order to assess the QoL, but also to provide the perspective of an active change in the perspective of a better treatment process, rehabilitation and communication in society.